Wednesday, December 17, 2014

5 Famous People who overcame their disability

I often hear people with disabilities saying that they want to do a certain big thing but they won’t even try, because they know they won’t succeed. But have you even tried? Maybe there is a way to do it, or maybe there is something else you can do which is very much related to your first plan. Where would the world be if everyone did the same? You might say that the others are not disabled so everything is easier for them. So I picked 5 disabled personalities who will live forever in the world’s memory for their amazing achievements. What if they would have had this “I can’t” attitude? The world would be poorer for sure. So next time you hesitate, think of these awesome people and try again!

Stephen Hawking (born in 1942)

It’s almost impossible to never hear of Stephen Hawking on the internet or on TV. He is an English theoretical physicist, cosmologist, author and Director of Research at the Centre for Theoretical Cosmology within the University of Cambridge and he is famous for discussing his own theories and cosmology in general.

Hawking has a motor neuron disease related to amyotrophic lateral sclerosis (ALS), or Lou Gehrig's Disease, a condition that has progressed over the years. He is almost entirely paralysed and communicates through a speech-generating device.

As a science enthusiast myself, I think this man is amazing. And the most important, he never gave up on his studies and his dream of making groundbreaking discoveries, despite his condition which got worse and worse as the years passed.

Since the 1990s, Hawking has accepted the mantle of role model for disabled people, lecturing and participating in fundraising activities. At the turn of the century, he and eleven other luminaries signed the "Charter for the Third Millennium on Disability" which called on governments to prevent disability and protect disabled rights.
References:
http://en.wikipedia.org/wiki/Stephen_Hawking
http://www.hawking.org.uk/
https://www.facebook.com/stephenhawking

Ludwig Van Beethoven (1770 - 1827)

We move on to those who are no longer on Earth, but only in spirit and memory. Not many know that the famous musician whose symphonies are still listened every day all over the world, was actually deaf. He gradually lost his hearing, starting from the age of 30, and by the last decade of his life he was totally deaf.

Despite his loss of hearing, he continued to compose, many of his most admired works actually dating from the time when he was completely deaf. There are lots of explanations for his ability to still compose wonderful music despite his complete lack of hearing, but I guess he just found a way to adapt and keep doing what he loved the most.

So next time you hear the Ninth Symphony, remember that disability is not an impediment to doing what you love, but just a challenge you can overcome!

Frida Khalo (1907 - 1954)

The famous Mexican painter is well known for her self-portraits and her work has always been an emblematic of Mexican national and indigenous tradition and by feminists for its uncompromising depiction of the female experience and form.

She had numerous health issues, part of which were caused by a bus accident in 1925. The bus she was riding collided with a trolley car. She suffered serious injuries as a result of the accident, including a broken spinal column, a broken collarbone, broken ribs, a broken pelvis, eleven fractures in her right leg, a crushed and dislocated right foot, and a dislocated shoulder. She recovered from the serious injuries, but never fully.

Kahlo also contracted polio at age six, which left her right leg thinner than the left; she disguised this later in life by wearing long, colorful skirts. It has been conjectured that she was born with spina bifida, a congenital condition that could have affected both spinal and leg development.

Despite her situation, she never gave up on painting, instead she managed to transcend her pain and express it in her paintings.

Bethany Hamilton (born in 1990)

Bethany is an American professional surfer who lost one of her arms in a shark attack back in 2003. While most people doubted she would be back to surfing, she never allowed her accident to stand in the way of her passion – surfing. She wrote about her experience in the 2004 autobiography Soul Surfer: A True Story of Faith, Family, and Fighting to Get Back on the Board. In April 2011, the feature film Soul Surfer was released; it was based on the book and additional interviews. She has appeared on many television shows since the loss of her arm.

Her and her husband, Adam Dirks, are competing as a team on one of my favorite TV shows, The Amazing Race, which has the final episode this Friday. They made it to the final 4 and I’ve been rooting from them from the very beginning, really hoping they will win this. Bethany was amazing through the whole competition and rocked all the challenges despite her having one arm. I always try to adapt to the everyday tasks, but even I was blown away seeing her finding her own ways to do things which are sometimes hard to do even for people with two arms. And what I loved the most about their team, I’ve never seen them fighting or arguing. One of my favorite all time teams! Best of luck on Friday, Bethany and Adam!

Nicholas James "Nick" Vujicic (born in 1982)

Nick is an Australian motivational speaker and an Evangelist preacher born with a rare disorder called “tetra-amelia syndrome”, which basically means that he is missing all of his four limbs. Despite his severe condition, he chose to have a fulfilling life and motivate everyone else to do the same. He has a double bachelor degree in accounting and financial planning and he is the founder of the non-profit organization Life Without Limbs.

Vujicic promotes his work through television shows and through his writing. His first book, Life Without Limits: Inspiration for a Ridiculously Good Life was published by Random House in 2010. He markets a motivational DVD,Life's Greater Purpose, a short documentary filmed in 2005 highlighting his home life and regular activities. The second part of the DVD was filmed at his local church in Brisbane – one of his first professional motivational speeches. He markets a DVD for young people titled No Arms, No Legs, No Worries!.

He managed to look beyond his disability and lead a fulfilling life, while helping others to overcome their own obstacles and I think that's an amazing way of spending your life.



Thursday, December 11, 2014

5 Disability Support and Motivation Blogs

Over the past few days, I immersed myself into the big world of Blogging, trying to select 5 of the ones I like the most to share with you guys. Some have very valuable day by day information regarding living with a disability, others are just stories depicting the lives of people who chose to live their life to the fullest, despite dealing with a disability - which is what my blog is trying to motivate all of you wonderful people reading my blog. So, to a few examples of helpful websites and blogs:

Disability Horizons
Facebook Page
This magazine is the UK’s fastest growing disability lifestyle publication. Started in the summer of 2011 by two disabled entrepreneurs, Disability Horizons now has a rapidly growing monthly web audience of 25.000 people. The most important thing about this magazine is that it is entirely sourced from its reader community. The main goal of its content is to motivate people with disabilities to live exactly as they choose, which is also what my blog is all about. Their categories feature subjects such as: Entertainment, Lifestyle, News &Views, Relationships & Sex, Sport, Technology, Travel and Work&Education. Highly recommended!

Off the Wall Disability and Disabled Blog
Twitter
A group of disabled people in the UK who also run the famous www.ableize.com (the UK’s largest and busiest disability resource) created this blog to share everything related to disability and mobility which could be of high interest for the people who are dealing with these issues. There is a bit of everything for everyone from daily living aids to shopping sites, both on the website and on the blog and most of it is targeted to everyone and not just UK citizens. Community of this kind are very important, so we can all support eachother and share the things which truly matter.

Disabilities Unlimited
Facebook
I chose this blog because it was created by a person who is also trying to make the best of of his life despite the challenges he faces every day. I was surprised to learn that he was also born with Arthrogryposis, which is quite a rare condition. But I guess it is somehow in our blood to keep going and try to reach the sky, right? Bill Micklitz is also a Speaker/Consultant contantly helping employers to see the real value of hiring people with disabilities and encouraging them to bring diversity into their business. “Very educational, amusing, and lots of laughs.” is a quote which made me check out more of his stuff and I’m sure it will be helpful for you too!

Disability Thinking
Facebook Page
This Blog is owned by Andrew Pulrang, another wonderful person who decided to break all barriers and live the life he wanted to live even though he is also dealing with Arthrogryposis. Just like my blog and the others I have presented here, the whole content is written in a positive, uplifting way, but without forgetting to talk about the real life as we all face it every day. I really love his style and I recommend his blog to everyone who is reading my blog!

Hedgehog Blog
Facebook Page
A beautiful 32 years old mom who has been dealing with Cerebral Palsy since birth, chose to show the world bits of her happy family life. Scrolling through her posts always puts a smile on my face, she really does seem happy and she is a clear example that having a disability should never keep you back from having the life you want, get married, have kids and enjoy every second of it to the fullest.

If any of the blog owners mentioned here see this post, I want to thank you for being awesome and show the world that disability can't take away your right of living a free and full life!

Tuesday, December 9, 2014

Reduced mobility: Putting on socks, shoes, and fastening laces without using your hands

So now that we took the introduction out of the way, let’s get to a problem which a lot of people with reduced mobility face every day: gaining independence. Sure, in some cases gaining 100% independence is impossible and we still need someone to assist us with some tasks, but if there are things we can do on our own, it will improve our lives so much and our self confidence too!

Getting dressed can be quite a challenge for some of us. Hands and arms reduced mobility, weak muscles, legs which don’t bend and the reduced ability to bend down because of the medical condition we are dealing with. All of these can be things which make getting dressed on your own sometimes impossible.

In my case, my legs don’t bend and I can’t bend down myself due to severe scoliosis. I could always get dressed (even though I strain my back a lot), but when it came to socks and shoes, I would surrender without a second thought. So upon my decision of moving out of my parents house for studies, I had to find a solution to a problem which seemed to have no way of getting solved: I need hands to get my socks and shoes on, and my hands won’t go that far. But wait! You can actually do this without hands. How? I will explain further.

After talking to some wonderful people who are dealing with the same issues as I do + further research, I came up with a system for hands-free socks and shoes with laces which require no fastening. It will require some shopping but it’s nothing too expensive and it will be so worth. Also, the stick I’m using for the shoes can be used for getting dressed as well without major effort! I am only using sneakers and any sort of shoes which need laces, because my feet are weird and shoes will escape with any occasion. So to avoid frustrating events and having to awkwardly ask people to pick up my rebel shoe from the ground, I like to keep them nicely and tightly wrapped around my foot. If you don’t need laces, then the first part should work just fine if you are still having trouble putting on socks and shoes.

The things and method which I am going to post works for me like a charm, but depending on your condition and mobility/muscle strength, you might want to do more research and look for different similar items to aid yourself. Contact me and I will personally help you find a solution tailored to your needs, as much as I can.

For the socks, you only need one item: a stocking aid. You need to find the model which suits you the best. I have this simple model I purchased from Amazon for £4: Sock and stocking aid - Mobility Aid (this is from Amazon UK but you can find very similar products on Amazon US as well) . Just roll the sock on it and pull it up your feet. It works great for hands with reduced mobility too, you can just put your hands through the loops at the end of the handles. It’s also super resistant.

Anyway, back to my shoes system! What you need:
  1. A dressing stick. My choice was this simple Aidapt Dressing Stick which was only £5 on Amazon UK. It’s also amazing for grabbing my clothes from wherever they are without having to stand up, hooking my pants and pulling them up from a fair distance. No back straining, no worries.
  2. Lock Laces. These things were designed for running and sports but ironically they can be a true blessing for those of us who can’t even walk properly. Just set them up into your sneakers and get to the next step!

Now, what I do is pretty simple. Note that for the first step, some sneakers might not have the little piece of fabric in the back, which I use for hooking the sneakers with the dressing stick. But you can easily grab a needle and some fabric and sew something small and subtle on the inside of the shoe, but careful to make it strong enough to hold the pulling. So to the steps:
  1. Hook your shoe with the dressing stick like in the picture. Drag it in front of your foot and try to guide it carefully and slip your foot in it. For me it’s a bit hard to do sometimes, since my feet have a strange shape, so depending on your feet it may need a bit of pulling. Worry not that the hook will break, it’s actually really strong!
  2. So now that you have the foot inside the shoe, here comes the tricky part. Take the stick and hold it upside down, with the hook towards your shoes. Then slowly hook the laces starting from the bottom and pull, to fasten them. When you reach the top, just hook it and pull hard to reach your other hand. Hold it tight, and with the other end of the stick just push back the locking part, until it reaches the shoe. Let it go from your hand, then try to tuck the hanging part of the lace with the stick. This part can be tricky but it’s ok to leave it hanging too if it’s not too long. It actually looks quite fancy.

I'm very sorry for the pictures quality, I will try to change them when I have better light and someone to hold the stick or the shoe for me, it was quite hard to do it on my own.





So now you have your shoes and you’re ready to go. And you did it all by yourself! I know the first time I did it I felt like I have achieved something amazing. Which sounds funny because it’s normally such a simple task. But hey, the idea is to adapt and this is what we do here!

And when you want to take off your shoes, just use the other end of the dessing stick. Slip it between your shoe and foot and push. Off it goes with one move!

I would love to hear opinions and other methods. Also, I’d be very happy if you decide to post here if you tried it and it works fine for you. Don’t hesitate to ask me questions, I’d be happy to offer more support if I can!